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End of life care Resources

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A Lion in the House

Primary Author: SuperSibs!

A series of short educational video modules on targeted subjects, based on the Emmy Award-winning documentary about children who were being treated in the pediatric oncology unit at Cincinnati Children's Hospital Medical Center.

Includes modules on:

- Survivorship and late-effects
- Pediatric end-of-life issues
- School issues
- Impact on siblings
- Spirituality within pediatric oncology
- Nurse-patient boundaries

The video modules are free online. The full-legnth documentary and the LION Companion Book are available for purchase.

Date Last Modified 12/31/2008 Video, Course curriculum

A multidisciplinary training program for spiritual care in palliative care

Primary Author: Palliative Care Australia

Complete curriculum materials for trainers including, instructor's guide, slide presentations, videos, vignettes, and handouts.

Requires registration with a free account to access.

Date Last Modified 12/31/2007 Course curriculum

A National Framework and Preferred Practices for Palliative and Hospice Care Quality

Primary Author: The National Quality Forum

This report details a framework for palliative and hospice care, intended to serve as a foundation for a quality measurement and reporting system. The report also discusses a set of preferred practices to improve palliative and hospice care.

Spiritual, Religious, and Existential Aspects of Care comprise the 5th domain of palliative and hospice care in this report.

The Executive Summary is available for free download from the page. The full report is free to NQF members and costs $29.99 for non-members.

Date Last Modified 12/01/2006 Report/Document/Book chapter

A Time for Listening and Caring Spirituality and the Care of the Chronically Ill and Dying

Primary Author: Christina M. Puchalski, GWish: The George Washington Institute for Spirituality and Health

A thoughtful, informative, and practical guide for anyone involved in caring for the seriously and chronically ill or dying. This book covers how spiritual care can be integrated into traditional caregiving. Part one discusses aspects of spirituality, such as presence, ethics, and relationships. Part two delves into a number of specific religious and theological traditions. Part three offers practical applications and tools, including storytelling, psychotherapy, dance, music, and the arts. Part four focuses on patients' stories and reflections.

Date Last Modified 06/01/2006 Book

An Exploratory Study of Spiritual Care at the End of Life

Primary Author: Timothy P. Daaleman, University of North Carolina at Chapel Hill

Article from the Annals of Family Medicine describing a qualitative research study into how spiritual care is perceived and delivered at the end of life. The authors concluded that "Clinicians and other health care workers consider spiritual care at the end of life as a series of highly fluid interpersonal processes ... rather than a set of prescribed and proscribed roles".

Date Last Modified 09/01/2008 Article
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