Resources

Clinical Genetic Information	Education in Genetics
Genetics Databases	Reference Information
Ethical, Legal, and Social Issues	Research Facilities and Groups
Medical Literature	Clinics
Pediatric Resources	Support Groups and Related Charities
Professional Associations for Geneticists	Companies in Genetics and Biotechnology

Clinical Genetic Information

• Online Mendelian Inheritance in Man
• National Library of Medicine Search Tool
• Free MEDLINE
• HGMP OMIM Home Page (UK site)
• Office of Genetics & Disease Prevention
• Clinical Teratology Web Site
• Graphical and Visual Interfaces to the Gene Sequence
  • The Genome Channel - prototype Java interface to the gene sequence
  • Gene Map from the 10/96 issue of Science Magazine
  • Cytogenetics Gallery - Chromosome images, linked to a glossary to provide direct definitions of terms used on the page
  • Lawrence Livermore National Laboratory Chromosome 19 Physical Map - searchable map, uses Java
  • Los Alamos National Laboratory Chromosome 16 Physical Map
  • DNA Learning Center, Cold Spring Harbor Laboratory
  • Images of Biological Molecules

Education in Genetics

• Basic information on Genetics
  • Blazing a Genetic Trail - a report from the Howard Hughes Medical Institute
  • Understanding Gene Testing - FAQ
  • To Know Ourselves - introductory overview of the Human Genome Project
  • Gene Therapy - web-based course
  • MIT Biology Hypertextbook - includes several chapters on genetics
  • Virtual Courses on the Web - includes a section on "Genetics and Cell Biology"
• Materials for Educators
  • Medical School Core Curriculum in Genetics
  • Genetics Education Center - links to genetics education resources
  • Genetic/Genome Lesson Plans and curriculum development links
  • Carolina Biological Supply Company - teaching materials and publications
  • The Visible Human Viewer
  • Washing State Genetics Documents
  • National Coalition for Health Professional Education in Genetics
• Educational Institutions
  • USUHS - Uniformed Services University of the Health Sciences

Genetics Databases

• The Genome Database
• Database of Genome Sizes
• Entrez - Search the NCBI Databases
• Stanford Genomic Resources
• Helix - a directory of medical genetics laboratories
• TIGR Microbial Database - microbial genomes that have been published or are being sequenced
• GeneCards - searchable database of genes information, includes a guided tour
• TERIS, Teratogen Information System

Reference Information

• Genetics in the News - the CDC Office of Genetics & Disease Prevention
• Glossaries of Genetics Terminology
  • NIH Glossary of Genetic Testing Terms
  • Glossary: Primer on Molecular Genetics
  • A Genetics Glossary
  • Genome Database Nomenclature - searchable list of gene symbols
• Other Lists of Links
  • Welch Web - the Johns Hopkins University Welch Library
  • Emory MedWeb- Genetics and Molecular Biology
  • Yahoo! - Science:Biology:Genetics:Human Genetics
  • MedNav.com - Guide to Internet Medicine
  • HGMIS Gateways
  • Office of Rare Diseases - links for patients, providers and researchers
  • CERN Virtual Library, Genetics section
  • Family Village University - Links to Disability Research Programs
  • Genetic Conditions/Rare Conditions Support Groups & Information Page

Ethical, Legal, and Social Issues (ELSI) in Genetics Research

• Ethical, Legal, and Social Aspects of Medical Care - lecture series notes
• HGMIS Gateways - Ethical, Legal, and Social Issues - list of links
• Center for Bioethics, University of Pennsylvania
• ELSI in Science
• Human Genome Project ELSI Information
• NIH Human Genome Research Institute ELSI
• Task Force on Genetic Testing - reports on "Promoting Safe and Effective Genetic Testing in the United States"

Research Facilities and Groups

• The Human Genome Project
  • Human Genome Project Information
  • NIH Human Genome Research Institute
  • DOE Human Genome Program
  • UK Medical Research Council Human Genome Mapping Project Resource Centre
  • Lawrence Livermore Human Genome Center
• Howard Hughes Medical Institute
• The National Center for Biotechnology Information (NCBI) index
• National Institutes of Health (NIH)
• NIH Office of Recombinant DNA Activities
• Genome Annotation Consortium - to provide a comprehensive sequence-based view of genomes
• Genetics & IVF Institute
• FRAXA Research Foundation - Fragile X Syndrome
• Texas Department of Health - TEXGENE - Texas Genetics Network
• Illinois Teratogen Information Service
• The Jackson Laboratory - provides mice colonies for specific genetic research, web site includes the Mouse Genome Database

Medical Literature

• PubMed - search MEDLINE citations
• Classic Papers in Genetics - reprints of early papers
• JAMA In This Issue - Oct 15, 1997 - Journal of the American Medical Association, Genetics Issue
• Genomic Medicine: Internet Resources for Medical Genetics - JAMA article listing resources
• Genetics Information for Health Professionals - articles on cancer and genetics
• Human Genome Project Publications - to order, subscribe and browse
• Human Genome News - quarterly newsletter
• Science Magazine Genome Issue (10/96), includes a gene map
• Information Ventures, Inc. Biomedical/Environmental Health Server
• Pediatrics Journal - full text of articles on-line requires subscribing

Clinics

• Clinical Genetics Centers - list of descriptions and contact information on Counselors, Centers, Clinics and Departments, by geographic region within the USA
• Genetic Counselor Directory Search Form - search the National Cancer Institute directory of genetic counselors.

Pediatric Resources

• Pediatrics Journal - full text of articles on-line requires subscribing
• Fact Sheets for parents - From the CDC, easy to read handouts on many subjects.
• Child and Teen Nutrition - Info for you and your parents on many nutritional subjects.
• Health Web Sites from KidsHealth.org.
• PEDINFO Home Page - an index of the Pediatric Internet

Support Groups and Related Charities

• Genetic Conditions/Rare Conditions Support Groups & Information Page
• Alliance of Genetic Support Groups - National directory
• March of Dimes Birth Defects Foundation - information and resource site
• National Down Syndrome Congress - Advocacy organization
• National Down Syndrome Society - Education, Research and Advocacy organization
• National Information Center for Children and Youth with Disabilities - information on publications and services
• PediaNet - information for parents

Professional Associations for Geneticists

• Genetic Professional Societies - addresses and links
• Genetics Societies Home Page - links to all their home sites
• Careers in Genetics - includes profiles of geneticists
• National Coalition for Health Professional Education in Genetics

Companies in Genetics and Biotechnology

• Biotechnology Industry Organization Online
• Cherwell Scientific - sells pedigree drawing software

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Support Software

• QuestionPro Online Survey Software

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